Below are a few links which have been suggested by EDKPA members.

(Please see disclaimer at the bottom of the page)

 

 

General Sites


National Kidney federation ('Run by patients for patients')

Huge stock of advice on everything from medical matters to holidays.

http://www.kidney.org.uk/

 

.. in fact, their links page at http://www.kidney.org.uk/links.html is hard to beat.

 

The British Kidney Patients' Association is also a good starting point at http://www.britishkidney-pa.co.uk/ ('Kidney patients young and old now know they can turn to the BKPA for support, advice and perhaps more importantly, financial help and a much needed break with their families'.)

 

Also try kidneypatientguide.org at http://kidneypatientguide.org.uk/site/contents.php

  

New to Dialysis?

 

Try the NKF site above (http://www.kidney.org.uk/), plus http://en.wikipedia.org/wiki/Dialysis

 

A recent site which is suited to explaining the various types of dialysis is at

http://www.dialysisoptions.org/index.html

 

Try the British Kidney Patient Association here: http://www.britishkidney-pa.co.uk/

 

Need a holiday? - Try these..

 

http://www.kidney.org.uk/holidays/dialysis_uk.html#7

 

Arrangements for holidays

http://www.kidneypatientguide.org.uk/site/holidays.php

 

Advice from the Hammersmith patients' site

http://www.hammersmithkpa.org.uk/docs/holidays.htm

 

Mission: "Our primary aim is to help to improve the quality of life for dialysis patients in the UK by providing access to dialysis away from home in the UK via the UK Dialysis Swap Scheme.". See http://www.dialysisfreedom.co.uk/

Local News

 

Local transplant week in Devon - BBC stories of local patients.

http://www.bbc.co.uk/devon/content/articles/2009/07/10/transplant_week_feature.shtml

 

Live donation

http://www.bbc.co.uk/devon/content/articles/2009/07/08/live_kidney_donor_feature.shtml

 

 

Blogs

Try

 

http://www.kidneypatientguide.org.uk/newBB/index.php ('For kidney patients and those who care for them'.)

 

http://renaltsar.blogspot.com/ ('Working for better kidney care')

 

https://www.renalpatientview.org/ ('provide online information about renal patients' diagnosis, treatment, and their latest test results')

 

Patient/Carers

 

              http://www.patient-experience.com/ ('For patients share valuable experiences on the subjects of medicine and healthcare. 
 

 

Local Members' Sites (want to be included? Contact us)

 

Ann and Rich Owens

http://www.flickr.com/photos/cyclingmrso/

 

Kidney transplant patients' site for fundraising for EDKPA.

http://www.tivertonmart.co.uk/auction/APMarketplaceView.asp?id=6

 






 

 

What's happening in other KPA's? -

                   Check these out - you'd be surprised what's going on!

 

in no particular order...

 

Wessex

http://www.wessexkpa.org.uk/

 

Addenbrooks

http://www.akpa.org.uk/

 

Hammersmith

http://www.hammersmithkpa.org.uk/

 

Walsgrave

http://www.whkpa.org.uk/

 

Guy's & St Thomas

http://www.gsttkpa.org/

 

Welsh KPA

http://www.wkpa.org.uk/

 

Northern Ireland

http://www.nikpa.org/

 

Nottingham and Notts

http://www.nnkpa.org/

 

Swindon

http://www.skpa.org.uk/SKPA/

 

Aintree

http://www.aintreerenalunit.nhs.uk/patientinfo/aintree_renal_patient_info/aintree_kidney_patients_association.asp

 

Brimingham

http://www.equip.nhs.uk/Support/group/1817/details.aspx

 

Leicestershire

http://www.lkpa.org.uk/

 

South East Scotland

http://renux.dmed.ed.ac.uk/EdREN/Unitbits/SESKPA.html

 

St Georges (Tooting)

http://www.sgkpa.org.uk/

 

Tyneside

http://www.tynesidekpa.org.uk/

 

Grampian

http://beehive.thisisnorthscotland.co.uk/default.asp?WCI=SiteHome&ID=12133

 

North Staffs

http://www.nskpa.org.uk/

 

Orkney

http://www.orkneycommunities.co.uk/OKPA/

 

Six Counties

http://www.sixcountieskpa.org.uk/

 

Kent

http://www.kentkidneypatients.co.uk/

 

European Kidney Patients' Federation

http://www.ceapir.org/wb/index.php

 

American Association of Kidney Patients

http://www.aakp.org/

 

 

 

Education/Transplantation

 

Organ donation in the UK. REGISTER NOW. http://www.uktransplant.org.uk/ukt/default.jsp

 

Live Life then Give Life - lively site with a good message: http://www.lltgl.org.uk/

 

Living donation - excellent site with much information if you have any queries about live donation, including blogs from people who have donated:http://livingkidneydonation.co.uk/

 

NHS Organ Donation Education Website: http://www.giveandletlive.co.uk/

 

Transplant Sports UK: http://www.transplantsport.org.uk/

 

Transplants In Mind: http://www.transplantsinmind.org.uk/

 

Kidney Research UK: http://www.nkrf.org.uk/

 

Live donation: http://www.bbc.co.uk/devon/content/articles/2009/07/08/live_kidney_donor_feature.shtml

 

The Choice (BBC Radio 4)

"When Di Franks asked her doctor about donating her kidney, she wasn't sure she would be taken seriously. Because Di wasn't giving her healthy organ to a sick and needy relative.. she wanted to donate it to a complete stranger. Five years ago it was illegal to give a kidney to someone you didn't know in this country.". Captivating listening...: http://www.bbc.co.uk/programmes/b011j8z2

 

 

If you have found any useful ones, let us know. Thank you.

 

 

EDKPA takes no responsibility for content of sites outside its own domain.